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May 01, 2007

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Diana

These are excellent suggestions. I wanted to share another product that helps me, Origins Peace of Mind On-the-Spot Relief. This stuff has been a lifesaver for me on many occasions.

http://www.origins.com/templates/products/sp_nonshaded.tmpl?CATEGORY_ID=CATEGORY5981&PRODUCT_ID=PROD54

zette

I'm a long-term migraine sufferer and am really interested in learning more about the connection between smells and migraines. But I'm not sure where to begin, so I'll just try to begin.

I'm now 49, but have had migraines since I was a teenager. I've known for years that MSG and BHA and BHT trigger migraines for me, so I've avoided those for most of my life. As I got older, my headaches seemed to cluster right around my period. I used to do the high dose of caffeine and tylenol routine, but when new medications started coming out for migraines, my doctor made them available to me. I take Imitrex, and most of the time, it seems to work pretty well, but lately I've been going through these periods of heightened sense of smell or hyperosmia in which any smell becomes more intense and more and more kinds of smells are triggering migraines. I've also been getting migraines that wake me up at night -- something I've never had before. I go for a few months with only those migraines connected to my period, and those I can manage, but then I get these months in which I have a series of the other kind of migraine and the "smell thing."

And I'm not finding much in the literature about smells as migraine triggers -- only about how smells and noise exacerbate migraines once they've started. Are the doctors just not getting it? When I asked my neurologist about it he literally just said, "Well that sucks because you can't control what smells you encounter." End of story.

But I'm finding that I need to change my daily habits in order to avoid smell triggers as much as possible. I've also started coughing and having trouble getting my breath when I encounter some smells -- particularly perfume. And trying to replace one smell with another doesn't seem to work for me because once I've encountered the trigger, I'm done for. All smells are then so intense. It has become excruciating for me to take the elevator in our building (small space intensifies smells, especially perfumes), or even to sit at dinner with friends, and most of the time, no one else is really even aware of the smells -- except my husband who has learned to watch out for me. He'll tell me -- don't sit by my mom tonight, she's doused herself in perfume again (even though I've told her several times that it's really painful to be around her when she's wearing perfume). My son and I were walking down the street yesterday and a woman half a block away was wearing a coat that reeked of moth balls; that set off a coughing fit, followed by a migraine. Last week, I scared my son when I couldn't stop coughing because a man a few paces ahead of us lit his cigarette using an old fashioned butane lighter. I spent the rest of the day fighting just to get through the day with a headache hanging out around my temples. I don't know what to do anymore to manage these, and I'm tired to being looked at as though I'm exaggerating or as though I'm a freak. I know what I smell, and I know what pain it causes.

I can't be the only person out these who has these clusters of migraines, can I? What do other people do to function on a daily basis and get through the day when everywhere you encounter triggers?

Thanks for listening.

Johnny Shmoe

Cigarettes trigger cluster headaches for me.
http://www.electroniccigarettesinc.com helped

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